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Join the CdLS Foundation for its parent-only virtual support group on October 1, 2026, from 7:00 to 8:15 p.m. ET. This confidential Zoom session allows parents to share experiences, listen, and connect with others who understand. For questions, contact Family Service at familyservicesteam@CdLSusa.org or call the Foundation at 888.753.2357.
Cornelia de Lange Syndrome Foundation is a non-profit organization in Avon. We provide services for anyone touched by Cornelia de Lange Syndrome and other isolating conditions. Our team supports over 3,500 individuals with this rare genetic spectrum disorder through support services, research programs, and educational initiatives.