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The CdLS Foundation offers a virtual support group for parents on November 5, 2026, from 7:00 to 8:15 p.m. ET. This confidential, parents-only Zoom meeting provides a space to share experiences, listen to others, and find support. For questions, contact Family Service at familyservicesteam@CdLSusa.org or call 888.753.2357.
Cornelia de Lange Syndrome Foundation is a non-profit organization in Avon. We provide services for anyone touched by Cornelia de Lange Syndrome and other isolating conditions. Our team supports over 3,500 individuals with this rare genetic spectrum disorder through support services, research programs, and educational initiatives.