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The CdLS Foundation is hosting its virtual support group for parents on December 3, 2026, from 7:00 to 8:15 p.m. ET via Zoom. You can share or just listen in this confidential, parent-only session focused on the topic "Bring Your Loved One." To register or for questions, contact Family Service at familyservicesteam@CdLSusa.org or call 888.753.2357; the Zoom link is provided after registration.
Cornelia de Lange Syndrome Foundation is a non-profit organization in Avon. We provide services for anyone touched by Cornelia de Lange Syndrome and other isolating conditions. Our team supports over 3,500 individuals with this rare genetic spectrum disorder through support services, research programs, and educational initiatives.